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LMNA cardiac / LMNA related cardiac diseases network

LMNA cardiac / LMNA related cardiac diseases network

LMNA related cardiac diseases information and network

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LMNA related links

1) Laminopathies Support Group (mutations in the LMNA Gene) (Facebook group)

2) A Study of ARRY-371797 (PF-07265803) in Patients With Symptomatic Dilated Cardiomyopathy Due to a Lamin A/C Gene Mutation (REALM-DCM) – Pfizer (information also available in Dutch)

3) REALM-DCM: A clinical trial for adults with symptomatic dilated cardiomyopathy (DCM) due to an LMNA gene mutation.

4) Universal Mutation Database – LMNA

5) LMNA Biobank

General information

1) PubMed® comprises more than 32 million citations for biomedical literature from MEDLINE, life science journals, and online books.

2) Laminopathy.org

3) EURORDIS-Rare Diseases Europe

4) Rare Disease Day

5) ClinGen – Clinical Genome Resource

6) AlphaFold Protein Structure Database

Other foundations:

1) L-CMD Research Foundation

2) Fundación Andrés Marcio, Niños Contra La Laminopatía (Spanish website / foundation) – Facebook link

Countries:

The Netherlands

Hartenbank

Netherlands Heart Institute

UK

Cardiomyopathy UK

Australia

Cardiomyopathy Association Of Australia

Germany

ARVC-Selbsthilfe

Italy

AICARM Onlus

Spain

SAMS

US

DCM Foundation

ChildrensCardiomyopathyFoundation

Hypertrophic Cardiomyopathy Association

Partners:

DCM foundation
Cure CMD
CMDIR
Global Heart Hub
Global Heart Hub

If you have any additional information/links that you think would add value to this site, please contact us.

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News, events and webinars

DCM Patient and Family Virtual Conference

  • Dilated Cardiomyopathy Educational Sessions
  • The Latest in DCM Research & Therapies
  • Patient-to-Patient Panel Discussions

Date: September 24th, 2022

Read more / Signup

LMNA patient meeting

  • The consequences of a DNA mistake in the LMNA gene
  • Metabolism in LMNA
  • Current and future treatments for LMNA

Date: October 10th, 2022

Read more / Signup

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