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LMNA cardiac / LMNA related cardiac diseases network

LMNA cardiac / LMNA related cardiac diseases network

LMNA related cardiac diseases information and network

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About us

Our mission is to bring together LMNA experts, key opinion leaders and patients to accelerate research and development, to find an effective treatment for LMNA-related cardiac disease.

Who we are

Stefan Bassant, entrepreneur and venture capital specialist, had the idea for LMNAcardiac.org in early 2021. Living with LMNA-related cardiac disease, Stefan realised there was a need to connect the people with the condition and those in a position to help treat it.

After commissioning research to uncover experts and key opinion leaders in the field, Stefan met his now business partner, Rogier Veltrop. Rogier also has LMNA-related cardiac disease, although his background is very different. A cardiology researcher at Maastricht University, Rogier brings scientific expertise to the partnership. 

Our vision

Our network currently consists of over 300 experts/key opinion leaders, more than 250 companies active in the LMNA/cardiac field, and an excess of 400 patients worldwide. 

Our vision is to continue to grow the LMNAcardiac network, creating a forum for individuals with a shared interest in LMNA-related cardiac disease to learn and develop together. 

Join us to be part of the journey.

ACTION FOR LMNA

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LMNA patient meeting
Recorded version available

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4TH INTERNATIONAL MEETING ON LAMINOPATHIES 2023
Madrid, 9 - 12 May, 2023

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