LMNA related cardiac diseases information and network
A mutation in the lamin A/C gene can lead to serious heart muscle disease. That is why a lot of research is needed to find a new solution. A very involved family, under the leadership of Rogier Veltrop, will help us in an international study set up in Maastricht. This is extraordinary because there are very few family […]
The recorded LMNA Patient Meeting (Zoom webinar) is available now. Would you like to receive the latest information and stay up to date on future LMNA Cardiac events? Please sign up for our newsletter to receive updates, news and events. WE NEED YOUR HELP We need your help to get in contact with as many […]
Pfizer Inc. (NYSE: PFE) announced that an interim futility analysis of the global Phase 3 trial, REALM-DCM, designed to evaluate the efficacy and safety of PF-07265803 in patients with symptomatic dilated cardiomyopathy (DCM) due to a mutation of the gene encoding the lamin A/C protein (LMNA), indicated the trial is unlikely to meet its primary […]
We are excited to announce the first DCM Patient and Family Conference, organized by the DCM Foundation, bringing hope and education to DCM patients and their family members. This full-day VIRTUAL event will be held from 11:00 AM – 5:00 PM EST and will be broken into 3 segments, each with Live Q&A. One registration […]
WEBINAR Date: July 20th, 2022 – 6:00-7:00 PM ET* (watch the recorded webinar) Details: Join us as we learn about the basics of DCM genetics and the future of DCM gene therapy. This promises to be a very interesting and informative event for all DCM patients and their family members. Topics Include: Date: Wed., July 20th, […]
The 2022 inaugural Global Heart Hub Cardiomyopathy Awareness Week Campaign aims to improve awareness, diagnosis and management of cardiomyopathy. The 2022 campaign theme is ‘Get to the heart of it’. The awareness campaign is led by the Cardiomyopathy Patient Council of the Global Heart Hub. The Cardiomyopathy Patient Council was formed in November 2021 and […]
During this webinar; critical information regarding genetic components of dilated cardiomyopathy, and Pfizer’s exciting Phase 3 Clinical Trial for which they are recruiting patients with the LMNA variant. Topics of the webinar include: – Genetics and progressive stages of DCM – Diagnosis, Evaluation of Family Disease Risk, and Treatment – Explanation of Pfizer’s Phase 3 […]
Phlox Therapeutics, a biotech spin-off of the Amsterdam University Medical Center founded by prof. dr. Yigal Pinto and prof. dr. Eva van Rooij, with Margien Boels, PhD as its initiating director of operations have announced the closure of its seed investment round. This pre-seed investment will be used to advancePhlox’s lead program focused on rare […]
WEBINAR INVITATION Therapies & Hope for LMNA-related DCM Patients During this webinar, organized by DCM foundation, critical information regarding genetic components of dilated cardiomyopathy, and Pfizer’s exciting Phase 3 Clinical Trial for which they are recruiting patients with the LMNA variant will be shared. Topics of the webinar will include:– Genetics and progressive stages of […]
RECORDED LMNA RESEARCH MEETING Discovering a cure for LMNA: Current strategies, crazy ideas and future collaborations Dear Sir, Madam, Thank you for joining the Research meeting focused on Lamin A/C Cardiomyopathy last Wednesday, April 13, 2022. We enjoyed it a lot and hope you did as well! 1. RecordingWe are happy to share the full recording of the Zoom […]
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