Register for our cycling event and help raise funds for LMNA research!

Support Groups

Facebook groups

These Facebook groups are for patients and their loved ones. The groups offers support, information, and a place to connect with others who understand what you’re going through.

LMNA-Specific Group

DCM-Specific Groups

Heart Device Groups

Heart Failure and/or Cardiomyopathy Groups

Websites & Resource Links

Zoom support group meetings

  • To sign up for any of the groups listed below, please visit:
    • Living with Chronic Illness Support Group – 4th Monday of each month from 7-8pm PST
    • Creativity & Chronic Illness – A peer support group for those living with chronic illness who would like to express themselves through art facilitated by Jess Minckley, MFA. Every Sunday from 10-11:30am (PST). No artistic talent necessary. Only pen and paper needed.
    • Living Mindfully with Chronic Illness – A supportive group for those wanting to live mindfully and with self-compassion facilitated by Bartja Wachtel, MSW, LICSW, MHP, CMHS 2nd and 4th Tuesday of each month from 6-7pm PST
    • Supporting a Loved One with a Chronic Illness – 3rd Tuesday of each month 5.30 – 6.30pm PST. This group is virtual and is open to loved ones living anywhere.

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Show Your Support

Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!