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Our Partners

Formed in 2017, the DCM Foundation’s mission is to provide HOPE and support to DCM Patients and Families with Dilated Cardiomyopathy through education, research and advocacy.
The Netherlands Heart Institute fosters excellent cardiovascular research on national and international level. They conduct basic science as well as clinical research.
The Genetic Cardiomyopathy Awareness Campaign was launched in the U.S. in early 2023 by eight U.S.-based cardiomyopathy patient groups to raise awareness about the need for genetic testing for cardiomyopathy patients and family members.
The mission of ERN GUARD-Heart is to facilitate access to diagnosis and treatment of rare and complex diseases of the heart in adult and paediatric patients across the European Union.
Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.
VSOP aims to promote the quality of life of patients with rare and/or genetic disorders, their loved ones, family and descendants.
Global Heart Hub is an alliance of heart patient organisations, aiming to create a unified global voice for those living with or affected by heart disease.

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Show Your Support

Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!