Our Partners
Formed in 2017, the DCM Foundation’s mission is to provide HOPE and support to DCM Patients and Families with Dilated Cardiomyopathy through education, research and advocacy.
https://dcmfoundation.org
https://dcmfoundation.org
The Netherlands Heart Institute fosters excellent cardiovascular research on national and international level. They conduct basic science as well as clinical research.
https://www.icin.nl/
https://www.icin.nl/
The Genetic Cardiomyopathy Awareness Campaign was launched in the U.S. in early 2023 by eight U.S.-based cardiomyopathy patient groups to raise awareness about the need for genetic testing for cardiomyopathy patients and family members.
https://geneticcardiomyopathy.org/
https://geneticcardiomyopathy.org/
The mission of ERN GUARD-Heart is to facilitate access to diagnosis and treatment of rare and complex diseases of the heart in adult and paediatric patients across the European Union.
https://guardheart.ern-net.eu/
https://guardheart.ern-net.eu/
Rare Diseases Europe is a unique, non-profit alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally.
https://eurordis.org/
https://eurordis.org/
VSOP aims to promote the quality of life of patients with rare and/or genetic disorders, their loved ones, family and descendants.
https://vsop.nl/
https://vsop.nl/
Global Heart Hub is an alliance of heart patient organisations, aiming to create a unified global voice for those living with or affected by heart disease.
https://globalhearthub.org/
https://globalhearthub.org/
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Show Your Support
Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!