LMNA Cardiac News
LMNA Cardiac Receives Wiek van Gilst Collaboration Prize at DCVA-NLHI Translational Research Meeting
June 22, 2026
LMNA Cardiac is proud to announce that it has been awarded the Wiek van Gilst Collaboration Prize during the 10th DCVA-NLHI Translational Cardiovascular Research Meeting in Utrecht. The award was presented to Stefan Bassant and Pieter Glijins in recognition of their efforts to advance collaboration between patients, researchers, clinicians, and organizations working to…Join the Ticking Clock Challenge and Support LMNA Cardiac
June 19, 2026
LMNA Cardiac is proud to be participating in the Ticking Clock Challenge (Dutch: Tikkende Klok Challenge), a unique fundraising initiative that brings people together to support important health causes while raising awareness and making a real difference. This challenge offers an opportunity for patients, families, friends, healthcare professionals, and supporters…Documentary Film Project Launched: Bringing LMNA Out of the Shadows
June 15, 2026
We are excited to share a powerful teaser video for a new documentary film project that aims to bring LMNA-related cardiac diseases out of the shadows. The film will primarily tell the story of Rogier, one of three patients featured — alongside Marco and Bjørn. Rogier is not only a…LMNA Cardiac Participates in Global Heart Hub Patient Networks Meeting in Amsterdam
June 12, 2026
Representatives of LMNA Cardiac recently attended the Global Heart Hub Patient Networks Meeting in Amsterdam, joining patient advocates from across the cardiovascular disease community for three inspiring and productive days of learning, collaboration, and discussion. The meeting brought together representatives from 52 patient organisations across 27 countries, alongside clinicians, policymakers,…Successful LMNA Cardiac In-Person Patient Meeting at Stanford University
May 20, 2026
Last week, the LMNA Cardiac Diseases Network hosted a very successful and inspiring in-person patient meeting at the beautiful Stanford University campus in Palo Alto, California. Over two special days, LMNA patients, families, researchers, clinicians, and industry representatives came together to connect, learn, and share experiences within the LMNA community.…LMNAcardiac.org Contributes to Advancing LMNA Cardiomyopathy Research
May 6, 2026
We are proud to share that LMNA Cardiac Diseases Network (LMNAcardiac.org) has been affiliated with several recent scientific publications focused on LMNA-related cardiomyopathy and laminopathies. These collaborations reflect the growing importance of patient organizations in accelerating research, increasing awareness, and supporting the development of future therapies. Among the recent publications:…Clinical Trial Search Tool
May 4, 2026
We have integrated the Global Heart Hub Clinical Trial Portal to help you easily find ongoing clinical trials relevant to LMNA-related cardiac conditions. This user-friendly tool brings together trusted, up-to-date information on clinical studies across different countries, making it easier to explore potential opportunities to participate in research. Clinical trials…LMNA Cardiac In-Person Meetup – Frankfurt, Germany (24 October 2026)
April 30, 2026
(German version below)We are pleased to invite you to an upcoming LMNA Cardiac in-person meetup taking place on 24 October 2026 in Frankfurt. This informal gathering is designed to bring together individuals and families affected by LMNA-related cardiac conditions in a relaxed and welcoming setting. Why join this meetup? We…Nuevocor Added as Speaker at Stanford LMNA Meeting and Agenda Now Available | 13–14 May
April 27, 2026
We’re excited to share that the agenda for the upcoming LMNA Cardiac Patient Meeting at Stanford University is now available — and it looks incredibly interesting, informative, and inspiring. We are also pleased to announce a newly confirmed and important session: Gene Therapy for LMNA Cardiomyopathy: A New Direction in…Patient-Led Sponsor Events Support LMNA Cardiac Research
April 27, 2026
We are incredibly grateful to see patients, families, and supporters taking action by organizing fundraising events for LMNA cardiac disease research. These inspiring initiatives are so important and make a real difference in helping research move forward. Sponsor Event in The Netherlands Supporters in The Netherlands are organizing a sponsor…
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Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!