Register for our cycling event and help raise funds for LMNA research!

LMNA Cardiac News

  • April Patient Meeting with Guest Rogier Veltrop

    March 26, 2024

    Update: Thank you to everyone that joined! Keep an eye our for future meetings in our newsletter! Join us on April 28th at 12 pm Eastern Time / 6 pm CEST for an empowering patient meeting focused on the latest in cardiac LMNA research, with our guest Rogier Veltrop. This…
  • Survey: Technology for LMNA Cardiac Diseases

    March 6, 2024

    In the fast-paced world of medical advancement, technology, including AI, offers groundbreaking possibilities for research and therapy development. We're eager to explore diverse viewpoints on leveraging technology to accelerate these breakthroughs. Whether you're in healthcare, research, or simply keen on the potential of tech in medicine, your insights matter. Every…
  • LMNA Cardiac’s Hybrid Indoor Cycling Event

    February 18, 2024

    We're thrilled to announce an exciting collaboration between the LMNA Cardiac Foundation and the Netherlands Heart Institute for a groundbreaking hybrid indoor cycling (spinning) event! Set to take place later this year in the crisp autumn season, this event aims to raise funds for critical LMNA research. Register Now! Date:…
  • Introducing LMNA Helper: Your AI Companion for LMNA Cardiac Diseases

    December 19, 2023

    Welcome to a new era of support and understanding with the launch of LMNA Helper! We're excited to unveil this first-of-its-kind AI virtual companion, meticulously crafted to offer guidance and information about LMNA cardiac diseases. Whether you're directly affected, a caring family member, or a dedicated healthcare professional, LMNA Helper…
  • Help Us Compile LMNA Medical Provider Information

    February 22, 2023

    Please send your responses to the questions below, via email to info@lmna-cardiac.local.We suggest that you copy the questions, paste them and provide responses after each question.Your email address will be kept confidential and will not appear in the document that we are putting together. And, of course, we will not be…
  • Pfizer to Discontinue Development Program for PF-07265803 for LMNA-Related Dilated Cardiomyopathy

    August 4, 2022

    Pfizer Inc. (NYSE: PFE) announced that an interim futility analysis of the global Phase 3 trial, REALM-DCM, designed to evaluate the efficacy and safety of PF-07265803 in patients with symptomatic dilated cardiomyopathy (DCM) due to a mutation of the gene encoding the lamin A/C protein (LMNA), indicated the trial is…
  • Phlox Therapeutics closes investment seed round

    May 16, 2022

    Phlox Therapeutics, a biotech spin-off of the Amsterdam University Medical Center founded by prof. dr. Yigal Pinto and prof. dr. Eva van Rooij, with Margien Boels, PhD as its initiating director of operations have announced the closure of its seed investment round. This pre-seed investment will be used to advancePhlox’s…

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