March 2025 | LMNA Cardiac Newsletter

Growing Together: LMNA Updates & Events

LMNA Cardiac News Update

Growing Together: LMNA Updates & Events

Dear LMNA Cardiac,

We’re excited to share the latest opportunities to connect, learn, and grow together. From this Sunday’s video chat to our upcoming patient dinner in Paris on May 22nd, there are so many ways to get involved. Dive into our new article on dietary and lifestyle tips for living well with a laminopathy, cardiomyopathy, or heart failure, and join us as we build the LMNA network with a recent trip to Scandinavia. Don’t miss out—register for Dr. Dominic Abrams’ webinar and the 5th International Meeting on Laminopathies!

Thank you for being part of this inspiring journey. Together, we’re making a difference—let’s explore what’s new!

Reminder: Sign Up for This Sunday’s Video Chat!

Don’t miss our LMNA patient video chat this Sunday, March 30th, 12:00–1:30 PM EST (6:00–7:30 PM CEST)! Connect with fellow patients, ask questions, and find support from those who truly understand. Spots are filling up—register now!

Upcoming 2025 Meetings

May 18
June 29
August 31
October 26
December 28

(Registration opens after each prior meeting)

Sign Up Here

New Article: Dietary and Lifestyle Recommendations for Optimal Overall Health While Living with a Laminopathy, Cardiomyopathy, or Heart Failure

Check out our latest guide on dietary and lifestyle recommendations for optimal health while managing a laminopathy, cardiomyopathy, or heart failure. Read it now at lmnacardiac.org and take charge of your well-being!

Read the new article

Building the LMNA Network: LMNA Scandinavia Trip

Following our successful U.S. tour last year (read more here), we at LMNAcardiac.org will be soon traveling to Sweden, Norway, and Finland to engage with the LMNA community. This trip furthers our mission to unite patients, experts, and advocates, advancing research and support for LMNA-related cardiac conditions.

Are you an LMNA patient or expert in the region? We’d love to meet you! Email us at info@lmnacardiac.org to set up a time. Together, we’re creating a stronger LMNA network!

More info

LMNA Patient Dinner in Paris: Connect with Us on May 22nd!

Join us for the LMNA Patient Dinner in Paris during the Laminopathies meeting on May 22nd, 2025, at 7:00 PM! Hosted by LMNA Cardiac, this unique event unites patients, families, and experts for an evening of connection, inspiration, and support. Secure your spot now at lmnacardiac.org—spaces are limited!

More info / Sign Up

Register for the 5th International Meeting on Laminopathies!

Join us in Paris, May 21–23, 2025, for this key event uniting experts, researchers, and patients to advance laminopathy care and research. Don’t wait—register now!

More info and registration

Reminder: Register for Dr. Dominic Abrams’ Webinar!

Join us Wednesday, June 4th, at 10:00 AM EST for a webinar with Dr. Dominic Abrams from Boston Children’s Hospital, a leading expert in LMNA cardiomyopathy and cardiovascular genetics. Don’t miss out and register for free now!

More info / register

Thank you for being a part of the LMNA Cardiac community. Together, we make a difference! ❤️

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Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!

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March 2025 | LMNA Cardiac Newsletter

LMNA Cardiac News Update

Reminder: Sign Up for This Sunday’s Video Chat!

New Article: Dietary and Lifestyle Recommendations for Optimal Overall Health While Living with a Laminopathy, Cardiomyopathy, or Heart Failure

Building the LMNA Network: LMNA Scandinavia Trip

LMNA Patient Dinner in Paris: Connect with Us on May 22nd!

Register for the 5th International Meeting on Laminopathies!

Reminder: Register for Dr. Dominic Abrams’ Webinar!

Recent News

Announcement: LMNA-331 Research Collaboration Between LMNAcardiac.org and Maastricht University Begins

Walking for a Cure: Dutch Team Raises Awareness and Funds for LMNA-Related Heart Disease

FDA Clears Nuevocor’s IND for NVC-001 Gene Therapy Targeting LMNA-Related Dilated Cardiomyopathy

Understanding Cardiomyopathy from LMNA Experts

LMNA Cardiomyopathy Unveiled: Expert Insights from Dr. Dominic Abrams

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