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Register Now: LMNA In-Person Patient Meeting in Raleigh, North Carolina – November 2–3, 2025

LMNAcardiac.org is hosting its next in-person patient meeting this fall on November 2–3, 2025, in Raleigh, North Carolina, U.S.

This two-day gathering will bring together individuals and families affected by LMNA-related cardiac conditions, alongside leading researchers and clinicians. The meeting will foster connection, share the latest scientific updates, and support advocacy and research efforts in the LMNA cardiac community.

🗓 AGENDA

All times are Eastern Standard Time (Note: Daylight Savings ends November 2)

📍 Sunday, November 2, 2025 – LMNA Patient and Family Day
Location: Raleigh, NC

  • 9:00 AM – 12:00 PM | LMNACardiac Social (Informal Gathering for Families and Patients)
  • 12:00 – 1:00 PM | Lunch
  • 1:00 – 4:00 PM | LMNA Patient and Family Meeting
    • Lectures with researchers
  • 4:00 – 5:00 PM | Expert Round Table: Clinical and Research Q&A
  • 7:00 PM | Dinner
  • Post-Dinner | LMNACardiac Social Continues

📍 Monday, November 3, 2025 – BridgeBio Visit
Location: BridgeBio Gene Therapy LLC, 1001 William Moore Dr, Ste 100, Raleigh, NC 27607

  • 9:00 AM | Welcome with Coffee and Pastries
  • 10:00 AM – 12:00 PM | Lab Tour and Presentations – Hosted by BridgeBio
  • 12:00 – 1:30 PM | Lunch – Provided by BridgeBio
  • 1:30 – 2:30 PM | Q&A with BridgeBio
  • 2:30 – 3:00 PM | Break
  • 3:00 – 4:00 PM | LMNA Patient Panel Discussions with Researchers

👉 Please fill out the registration form to join us.

Hotel & Accommodation

We’ve secured a discounted group rate for attendees of the LMNA In-Person Patient Meeting in Raleigh, NC (November 2–3, 2025).

👉 Reserve your room here: Book your room via Marriott

Please note:
For accessibility needs or booking issues, please contact the hotel directly.
The group rate is limited and available on a first-come, first-served basis.

* Optional blood bank donation will be offered to LMNA patients throughout the weekend for those interested in donating their blood for research purposes All venues are wheelchair friendly and accessible for those with mobility needs.

We’ll follow up with additional details including a detailed agenda.

Questions? Email us at info@lmnacardiac.org

Register:

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Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
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