Webinars & Events
Upcoming
Upcoming LMNA related meetings:
๐จ๐ป๐ฑ๐ฒ๐ฟ๐๐๐ฎ๐ป๐ฑ๐ถ๐ป๐ด ๐๐ฎ๐ฟ๐ฑ๐ถ๐ผ๐บ๐๐ผ๐ฝ๐ฎ๐๐ต๐ ๐ณ๐ฟ๐ผ๐บ ๐๐ ๐ก๐ ๐๐ ๐ฝ๐ฒ๐ฟ๐๐
Webinar in collaboration with Heart Health India Foundation
Date: July 1st 2025
Register
Webinar with Dr. Sears
Date: July 8th
Register
European Intermediate Filament meeting
Date: September 24-27, 2025
Location: Lyon, France
No website
Mechanobiology of the Nucleus
Mechanobiology of the Nucleus
Date: October 26-30, 2025
Location: Melbourne, Florida
LMNA in-person Patient meeting
Date: November 2-3, 2025
Location: Duke University, Durham, North Carolina
LMNA Patient Meetings
LMNA patient meeting โ August 2025 (August 31, 2025)
More information / RegisterPlease join us for our video group chat for patients with LMNA gene mutations on August 31st from 12-1:30pm EST (6-7.30pm CEST). The chat is a great opportunity to connect with other patients, ask questions, and gain support from people who โget itโ.
The upcoming LMNA patient meetings in 2025 will be on:
October 26, 2025
December 28, 2025
(Registration will open after the last LMNA patient meeting.)
Past Webinars & Events
Webinar: Dr. Dominic Abrams on LMNA Cardiomyopathy
Join us for a webinar with Dr. Dominic Abrams from Boston Childrenโs Hospital, an expert in LMNA cardiomyopathy and cardiovascular genetics. The session will take place on Wednesday, June 4th, at 10:00 AM EST.
Watch the recording!
Watch the recording!
Laminopathies meeting
Date: May 21-23, 2025
Location: Paris, France
Join Us for the LMNA Patient Dinner in Paris โ May 22nd, 2025
We are excited to announce a special Patient Dinner taking place on May 22nd, 2025, at 19:00, during the Laminopathies meeting in Paris. This event will be held at a restaurant near the conference venue, offering a wonderful opportunity for patients, families, and supporters to connect, share experiences, and enjoyโฆ
More information / register…
LMNA Cardiac Past Webinars
LMNA Cardiac Mei 2025 Patient Meeting
LMNA Cardiac March 2025 Patient Meeting
LMNA Cardiac January 2025 Patient Meeting
LMNA Cardiacโs Hybrid Indoor Cycling Event
LMNA Cardiac September 2024 Patient Meeting
LMNA Cardiac April 2024 Patient Meeting
The who, what and when of implantable cardioverter defibrillators in LMNA Cardiomyopathy
SADS Foundation Past Webinars
The following list has been curated for LMNA relevance.
SADS Foundation: Pregnancy – Patient Perspectives Webinar
Gene Therapy – What is it? How Does it Work?
Sports and Exercise Patient Perspectives
Clinical Trials: Learn the Basics
Genetic Testing – What’s All The Fuss About A VUS
What is an ICD, and what’s an S-ICD?
What is Ventricular Tachycardia?
Participating in Clinical Trials
Mind Over Body: Trusting Your Safety Nets
More SADS webinars can be found at:
- https://sads.org/resources/healthcare-professionals/webinars-seminars-conferences/
- https://sads.org/what-now/living-with-sads-webinars/past-webinars/
- https://www.youtube.com/@sadsfoundation/videos
DCM foundation Past Webinars
Help Us Save Lives – Become an Advocate
Understanding and Navigating DCM โ Expert and Patient Perspectives
Understanding Cardiomyopathy Genetic Therapies โ Our Hope for the Future
2023 DCM Patient & Family Conference
DCM & Heart Transplant โ 3 Patient Stories
DCM Basics โ Causes, Symptoms and Treatments
Cardiomyopathy, Genetics, and YOU โ webinar
Myths and Truths About Clinical Trials
โHealthy Togetherโ Wellness Webinar
Cardiomyopathy & Genetics Webinar / Launch of โGCACโ โ Get the Facts & Save Lives
Support for Your DCM Journey โ DCMF Programs, Services, and Helpful Advice
Insights and Hope When Living with a Heart Device
DCM Patient and Family Conference: Session #3 Patient-to-Patient Panel Discussions
DCM Patient and Family Conference: Session #2 The Latest in DCM Research and Therapies
DCM Patient and Family Conference โ Session #1: Dilated Cardiomyopathy Education
DCM Gene Therapy Advancement at Tenaya Therapeutics
What You Should Know About Cardiomyopathy & SILENT Sleep Apnea
The Heart Transplant Journey โ What You Should Know
Causes of DCM & Stages of Heart Failure
DCM Foundationโs Strategic Pillars Unveiled โ What this Means for You
Ask a Heart Failure Specialist
Living with DCM โ A Patientโs Perspective
The Latest in DCM therapies in Development โ with Tenaya
DCMF Webinar: โDCM & Heart Transplant: 3 Patient Storiesโ
The Science Behind DCM Gene Therapies
Living with a Pacemaker or ICD
The Latest in DCM Genetics Research & Therapies in Development (2021)
Ask a Cardiologist your Questions about DCM
Living with a Pacemaker or ICD: Insights & Hope
More DCM Foundation webinars can be found at https://dcmfoundation.org/webinars-news/
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Show Your Support
Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!