We are pleased to announce the next LMNA Cardiac In-Person Patient Meeting taking place in Stanford, California in May 2026. Following the success of our first U.S. in-person patient meeting in Raleigh, North Carolina, this event will once again bring together patients, family members, caregivers, clinicians, researchers, and advocates from across the country.
This in-person meeting is designed to strengthen community connections, share the latest scientific and clinical updates on LMNA-related cardiac conditions, and provide a supportive space for learning, discussion, and collaboration. Whether you are newly diagnosed, have been part of the LMNA community for years, or are a healthcare professional caring for individuals with LMNA-related disease, you are warmly invited to join us.
Event Information
Date: May 13–14, 2026
Location: Stanford University, Palo Alto, California, USA
Addresses: See below
Agenda:
(The full program is for everyone: patients and experts/researchers.)
Wednesday, May 13
Address: Terún Pizza, 448 California Ave, Palo Alto, CA 94306
| 5:00 PM | Social get-together |
| 7:00 PM | Dinner for everyone |
Thursday, May 14:
Address: Biomedical Innovation (BMI), 240 Pasteur Drive, Stanford, CA, 94305
| 9:00am-9:30am | Check in/registration & morning beverages |
| 9:30am-9:50am | LMNA and Pediatric Cardiac Disease: What do you need to know? Prof. Dr. Andrew Landstrom – Director of Translational Research, CHOP Cardiovascular Institute |
| 9:50am-10:10am | Genotype–Phenotype Relationships in LMNA Cardiomyopathy Prof. Dr. Gisèle Bonne – Sorbonne Université, INSERM, France |
| 10:10am-10:30am | Gene Therapy for LMNA Cardiomyopathy: A New Direction in Treatment Al Gianchetti, CEO, Nuevocor and Monica Shah, MD, FACC, CMO – Nuevocor |
| 10:30am-10:50am | Genetic Testing and Counseling: What patients and families with LMNA variants should know. Terralyn Schmidt, MS, CGC (Genetic Counselor) |
| 10:50am-11:10am | LAMIN: The LMNA Mutation Registry of North America Cindy Argueta Portillo (post bacc) |
| 11:10am-11:30am | Matthew Wheeler MD PhD – Associate Professor of Cardiovascular Medicine at Stanford |
| 11:30am-11:50am | Questions/Answers |
| 12pm-1pm | Lunch |
| 1pm-1:30pm | Citizen Health Kirsten Spenuzza |
| 1:30pm-3pm | Patient Panel with Dr. Michelle Khoo, EP, Cardiologist, LMNA Specialist and Alfredo Hernandez, Patient advocate & host of LMNA network video series |
| 3pm-4pm | Mingle/Goodbye |
| Video recording / Zoom presentation | Dr. Rajasekaran Namakkal-Soorappan and Dr. Sini Sunny – Associate Professors of Molecular & Cellular Division | Department of Pathology, University of Alabama at Birmingham |
Why Attend?
This meeting is an opportunity to connect in person with others who understand the challenges of living with LMNA-related cardiac disease, to learn directly from experts in the field, and to engage with the growing LMNA cardiac community. As with our Raleigh meeting, we aim to create an open, welcoming, and informative environment for everyone affected by LMNA-related conditions.
Interested in sponsoring this event?
If you or your organization would like to support the LMNA Cardiac In-Person Patient Meeting and help us bring the LMNA community together while advancing research and awareness, please contact us at info@lmnacardiac.org or visit our Donate & Support page for sponsorship opportunities.
Next Steps
More information will be shared in the coming weeks. We will also provide updates as details are finalized.
If you have questions in the meantime, please contact us at info@lmnacardiac.org.
We look forward to welcoming you to Stanford University in May 2026 and continuing to build a strong, connected, and empowered LMNA cardiac community.
Register: