November 2025 | LMNA Cardiac Newsletter

We invite all patients with LMNA Gene Mutations to join our next virtual group chat on December 28, 2025, from 12:00–1:30 PM EST (6:00–7:30 PM CET). This informal video session offers a chance to connect with others living with LMNA-related disease, share experiences, ask questions, and gain support from people who truly understand.

👉 More information & registration: lmnacardiac.org/patient-meetings

We’re also planning our 2026 meeting series — dates will be announced soon, and registration will open after the December meeting.

Hope to see you there!

We’re excited to launch a new video series hosted by Alfredo Hernandez, highlighting personal journeys and powerful conversations from across the LMNA cardiac community. The first episode features Alfredo’s own story, with many more voices to come.

The LMNA Cardiac Diseases Network is happy to extend an invitation to our community to participate in this series. We welcome patients and families who feel called to share their experiences living with LMNA-related disease. Your story could inspire, educate, offer support, and bring hope to others walking a similar path.

If you’re interested in being featured, please email info@lmnacardiac.org and address your message to our video series host, Alfredo Hernandez. We look forward to hearing from you and lifting up the voices of our community.

Stay tuned for upcoming episodes!

https://www.lmnacardiac.org/introducing-our-new-lmna-cardiac-video-series/

Following the success of our recent in-person LMNA patient meeting in the United States, we’re excited to announce our next in-person gathering — this time in the Netherlands. In April 2026, LMNAcardiac.org will host the first Dutch LMNA Patient & Gene Carrier Day, bringing together patients, families, and caregivers for a day of connection, learning, and shared experience.

The program will include expert presentations, patient stories, small-group discussions, and time to meet others navigating LMNA-related disease. This event is open to all LMNA Gene Carriers and their loved ones.

👉 More details, including the full program and registration, are available on our website: https://www.lmnacardiac.org/dutch-lmna-patient-gene-carrier-day/

We’re pleased to let you know that the recording of our recent webinar on Preimplantation Genetic Testing (PGT) for LMNA‑related cardiomyopathy is now live. The session brings together leading experts to explore how PGT can support families affected by LMNA mutations in making informed reproductive choices.

The presentation covers the latest scientific insights, practical considerations for clinics and families, and addresses questions submitted by the LMNA community.

👉 Watch the full recording now on our website.

Thank you for staying engaged — we’ll keep bringing you timely content to support the LMNA cardiac community.

Our new LMNAcardiac.org Merchandise section is now live — a campaign that began with one team walking 4×50 km during the Nijmegen Four Days Marches to raise money for LMNA research.

That effort sparked something bigger. As LMNA community members saw the team’s T-shirts on social media, requests started coming in for their own LMNAcardiac.org shirts — and so the next campaign was born.

Behind this initiative is a simple but powerful idea: turning concern into action, making LMNA visible, and bringing hope closer. Each item helps raise awareness and supports ongoing LMNA research and advocacy.

Explore our merchandise