December 2025 | LMNA Cardiac Newsletter

We’re excited to announce new virtual patient meeting dates for 2026. These online gatherings continue to be a cornerstone of our community, offering education, meaningful connection, and direct interaction with LMNA experts from around the world.

Additional details, including agendas and registration information, will be shared closer to each meeting.

🔗 More information and registration:
https://www.lmnacardiac.org/new-virtual-patient-meeting-dates-announced-for-2026/

We’re pleased to share an update on the LMNA-331 research initiative, highlighting recent progress and emerging insights from ongoing work. This project remains focused on better understanding disease mechanisms and accelerating paths toward effective treatments.

🔬 In this update, we outline key milestones reached so far and explain how patients and families can actively support the research — from data sharing to participation opportunities.

Your involvement helps move LMNA research forward.

The slides and recordings from our first in-person LMNA patient meeting in the United States are now available online. This milestone event brought together patients, caregivers, clinicians, researchers, and industry partners for meaningful discussion and learning.

🎥 You can now revisit expert presentations, patient perspectives, and panel discussions — or catch up if you weren’t able to attend in person.

➡️ Explore all materials on LMNAcardiac.org.

We invite members of the LMNA community to take part in an international survey on preimplantation genetic testing (PGT) for individuals and families with an LMNA variant.

📊 Your responses will help researchers and clinicians better understand perspectives, needs, and decision-making around PGT, ultimately improving counseling and support for families worldwide.

Participation is voluntary and only takes a few minutes — your voice matters.

A new episode of the LMNA Cardiac Video Series is now live! Episode 2 continues the conversation with personal stories, expert insights, and practical information relevant to living with an LMNA-related cardiac condition.

▶️ These short videos are designed to inform, empower, and connect our community — and are easy to share with family members or healthcare providers.

Watch the latest episode and explore the full series online.