The 5th International Meeting on Laminopathies, held in Paris last week, brought together a vibrant and engaged community of researchers, clinicians, patients, and advocates. Hosted by Antoine Muchir in collaboration with LMNAcardiac.org, the meeting was a powerful reminder of the impact a shared mission can have in the rare disease space.
Over the course of the event, attendees were treated to inspiring scientific presentations, thoughtful discussions, and meaningful personal connections. Experts across disciplines shared the latest advances in LMNA-related research, while patients and families added an essential voice to the conversation. The collaborative spirit was palpable—between scientists and clinicians, and between experts and those living with LMNA mutations.
“We are deeply grateful to everyone who participated,” said Antoine Muchir. “Your presence and engagement helped create an atmosphere of hope, discovery, and collective purpose.”
Staying Connected and Growing the Network
For those who attended and would like a Certificate of Attendance, requests can be made via email to info@lmnacardiac.org.
In the spirit of continued connection and collaboration, LMNAcardiac.org is encouraging all attendees to help grow the global LMNA community. If you know others—whether patients, families, or healthcare professionals—affected by LMNA gene mutations, please share LMNAcardiac.org with them. It’s easy to sign up for the newsletter and stay informed on LMNA-related research, events, and community news.
Let’s Make This Rare Disease Less Rare
The goal of LMNAcardiac.org remains clear: to raise awareness, connect people, and foster progress in the fight against LMNA cardiac conditions. Events like the Laminopathies Meeting underscore how powerful this community can be when we work together.
Thank you once again to everyone who made the Paris meeting such a success. We look forward to continuing this journey—together.
—LMNAcardiac.org Team
Websites: Laminopathies.net / LMNAcardiac.org