- December 26, 2024In a remarkable development for patients with rare cardiac conditions, Tampa General Hospital (TGH) has successfully treated a Florida woman…
- December 25, 2024We are thrilled to announce that the official website for the 5th Laminopathies Meeting is now online! The meeting will…
- December 25, 2024As we reflect on this past year, we are deeply grateful for your continuous support, dedication, and kindness. Together, we’ve…
- December 21, 2024We are thrilled to share that the LMNA PRIORITY Project is set to officially launch soon! Recently, all the team…
- December 21, 2024✨ A heartfelt WOW and THANK YOU to Katrin, a remarkable LMNA patient from Germany, for organizing the highly successful…
- August 29, 2024Dates: May 21-23, 2025Location: Sorbonne Université, Campus des Cordeliers, Paris, France Welcome to the 5th International Meeting on Laminopathies We…
- August 14, 2024We are excited to share the progress of our LMNA Promotion and Awareness Campaign through LMNAcardiac.org, our dedicated network for…
- July 17, 2024The PRIORITY project has received a grant of $8,000,000 from the Leducq Foundation. The grant was awarded to the consortium…
- July 15, 2024What is PSIDER-Heart?PSIDER-Heart is a research project in which various scientists and patients work together to understand more about inherited…
- March 26, 2024Update: Thank you to everyone that joined! Keep an eye our for future meetings in our newsletter! Join us on…
Register for our cycling event and help raise funds for LMNA research!
