- January 1, 2025We are excited to announce that registrations are officially open for the 5th International Meeting on Laminopathies, taking place from…
- January 1, 2025As we reflect on 2024, we are filled with gratitude for everything we’ve accomplished together. Whether it was raising awareness,…
- December 26, 2024In a remarkable development for patients with rare cardiac conditions, Tampa General Hospital (TGH) has successfully treated a Florida woman…
- December 25, 2024We are thrilled to announce that the official website for the 5th Laminopathies Meeting is now online! The meeting will…
- December 21, 2024We are thrilled to share that the LMNA PRIORITY Project is set to officially launch soon! Recently, all the team…
- December 21, 2024✨ A heartfelt WOW and THANK YOU to Katrin, a remarkable LMNA patient from Germany, for organizing the highly successful…
- August 29, 2024Dates: May 21-23, 2025Location: Sorbonne Université, Campus des Cordeliers, Paris, France Welcome to the 5th International Meeting on Laminopathies We…
- August 14, 2024We are excited to share the progress of our LMNA Promotion and Awareness Campaign through LMNAcardiac.org, our dedicated network for…
- July 17, 2024The PRIORITY project has received a grant of $8,000,000 from the Leducq Foundation. The grant was awarded to the consortium…
- July 15, 2024What is PSIDER-Heart?PSIDER-Heart is a research project in which various scientists and patients work together to understand more about inherited…
Register for our cycling event and help raise funds for LMNA research!
