Category: News and events

June 28, 2025

A dedicated team of walkers from the Netherlands is stepping up to raise awareness for LMNA-related cardiomyopathy during the world-famous…

June 5, 2025

Dr. Lisa Wilsbacher, MD, PhD, a distinguished cardiologist specializing in cardiovascular genetics at Northwestern University's Feinberg School of Medicine, recently…

June 4, 2025

LMNAcardiac.org has announced its next in-person patient meeting, taking place November 2–3, 2025, at Duke University in Durham, North Carolina.…

May 31, 2025

The 5th International Meeting on Laminopathies, held in Paris last week, brought together a vibrant and engaged community of researchers,…

May 19, 2025

We’re excited to announce that the upcoming Laminopathies Meeting will take place in person in Paris — and will also…

May 15, 2025

We’re excited to be heading to Paris next week for Laminopathies 2025, the international meeting dedicated to advancing research, care,…

April 16, 2025

LMNA patients and gene mutation carriers can donate blood during the Laminopathies Meeting in Paris, thanks to our dedicated expert…

March 27, 2025

We’re excited to share the latest opportunities to connect, learn, and grow together. From this Sunday’s video chat to our…

March 26, 2025

After our successful U.S. tour last year (read more here), we at LMNAcardiac.org are heading to Sweden, Norway, and Finland…

March 6, 2025

We are excited to announce a special Patient Dinner taking place on May 22nd, 2025, at 19:00, during the Laminopathies…