Category: News and events

April 16, 2025

LMNA patients and gene mutation carriers can donate blood during the Laminopathies Meeting in Paris, thanks to our dedicated expert…

March 27, 2025

We’re excited to share the latest opportunities to connect, learn, and grow together. From this Sunday’s video chat to our…

March 26, 2025

After our successful U.S. tour last year (read more here), we at LMNAcardiac.org are heading to Sweden, Norway, and Finland…

March 6, 2025

We are excited to announce a special Patient Dinner taking place on May 22nd, 2025, at 19:00, during the Laminopathies…

February 24, 2025

Watch the recording We’re excited to announce an upcoming webinar with Dr. Dominic Abrams from Boston Children’s Hospital, hosted by…

January 1, 2025

We are excited to announce that registrations are officially open for the 5th International Meeting on Laminopathies, taking place from…

January 1, 2025

As we reflect on 2024, we are filled with gratitude for everything we’ve accomplished together. Whether it was raising awareness,…

December 26, 2024

In a remarkable development for patients with rare cardiac conditions, Tampa General Hospital (TGH) has successfully treated a Florida woman…

December 25, 2024

We are thrilled to announce that the official website for the 5th Laminopathies Meeting is now online! The meeting will…

December 21, 2024

We are thrilled to share that the LMNA PRIORITY Project is set to officially launch soon! Recently, all the team…