January 2025 | LMNA Cardiac Newsletter

Help Us Grow the LMNA Cardiac Community | Patient Meeting & Laminopathies Meeting Reminders

LMNA Cardiac Newsletter

Help Us Grow the LMNA Cardiac Community –
Patient Meeting & Laminopathies Meeting Reminders

Dear LMNA Cardiac,

At LMNAcardiac.org, we’re committed to making our network and foundation as personal and impactful as possible. That’s why we’ve updated our About Us page to give you a closer look at the dedicated team behind the scenes.

Our team works tirelessly to expand the network, raise awareness, and provide support for those affected by LMNA cardiac diseases. We’re passionate about connecting patients, experts, and healthcare professionals to drive research and change.

Visit our updated About Us page to learn more about the faces behind the foundation and how we strive to make a difference every day.

🔗 Meet the Team Behind LMNAcardiac.org: LMNAcardiac.org/About

Warm regards,

Team LMNA Cardiac Diseases Network

Help Us Grow the LMNA Cardiac Community!

We’re always looking to expand our network of LMNA patients and experts—and we need your help! Our community currently spans more than 50 countries, but in some regions, we still have only a few patients and experts connected.

By spreading the word about LMNAcardiac.org to family members, other patients, and healthcare professionals, you can help us grow our global reach. A larger network means more opportunities to raise awareness, drive research, and provide support for those affected by LMNA cardiac diseases.

If you have suggestions, ideas, or need assistance, please don’t hesitate to reach out. Contact us at info@lmnacardiac.org — we’d love to hear from you!

Together, we can make a bigger impact for the LMNA cardiac community.

Reach out and let us know

Reminder: LMNA Online Patient Meeting – January 2025

Don’t forget to join us for our first LMNA Cardiac Online Patient Meeting of the New Year!

🗓 When: Sunday, January 26, 2025
⏰ Time: 11:00 AM – 12:30 PM Central Time (6:00 – 7:30 PM CEST)

This video group chat is a welcoming space where you can:

Meet others living with LMNA gene mutations.
Share experiences and ask questions in a supportive environment.
Receive insights and encouragement from fellow patients.

Starting this year, these bimonthly meetings will help foster a stronger, more connected LMNA community.

👉 If you haven’t already, register here to reserve your spot.

We look forward to seeing you there!

Register for the next patient meeting

Reminder: Register Now for the 5th International Meeting on Laminopathies

Time is flying, and we want to remind you that registrations are open for the 5th International Meeting on Laminopathies, taking place from May 21–23, 2025, at the beautiful Sorbonne Université, Campus des Cordeliers in Paris, France.

This meeting is a unique opportunity for researchers, clinicians, and patients to come together and explore the latest in laminopathy research and care. Don’t miss this chance to connect with experts and the broader community!

Important Updates

Abstract Submissions:
The abstract deadline for those hoping to be considered for an oral presentation is March 28th. You must have a paid registration for your abstract to be accepted. Abstracts for posters are due March 14th.
To submit your abstract, email a.muchir@institut-myologie.org and specify if it is for oral or poster presentation.
Sponsorship Packages Available:
Interested in sponsoring the event? Download the sponsor information on laminopathies.net.
Hotel Suggestions:
Need accommodation for the meeting? Find hotel suggestions on laminopathies.net.

Special Highlight: Patient Get-Together

A dedicated gathering for patients will be held, creating a wonderful space to share experiences and build connections within the laminopathy community.

Details and Registration

All the information you need is available on the official meeting website, proudly supported by LMNAcardiac.org.

🔗 Visit and register now: Laminopathies.net

Spaces are filling up quickly—secure your place today!

Find more information and register now

Thank you for being a part of the LMNA Cardiac community. Together, we can make a difference! ❤️

Stay Connected: Visit our Website | Follow us on Social Media (LinkedIn, X, Facebook)

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Show Your Support

Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!

Donate Donate

January 2025 | LMNA Cardiac Newsletter

LMNA Cardiac Newsletter

Help Us Grow the LMNA Cardiac Community!

Reminder: LMNA Online Patient Meeting – January 2025

Reminder: Register Now for the 5th International Meeting on Laminopathies

Important Updates

Special Highlight: Patient Get-Together

Details and Registration

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Walking for a Cure: Dutch Team Raises Awareness and Funds for LMNA-Related Heart Disease

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Understanding Cardiomyopathy from LMNA Experts

LMNA Cardiomyopathy Unveiled: Expert Insights from Dr. Dominic Abrams

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