May 2026 | LMNA Cardiac Newsletter

We are very happy to share that the recent LMNA Cardiac In-Person Meeting at Stanford University in California was a great success and brought together patients, families, researchers, clinicians, and industry representatives from across the LMNA community.

Over two inspiring days, participants had the opportunity to connect personally, share experiences, learn from expert presentations, and discuss ongoing developments in LMNA cardiac research and clinical care.

The meeting created many valuable new connections and highlighted the strength and importance of continued collaboration within the global LMNA community.

We would like to sincerely thank everyone who attended, presented, supported, and helped organize this special event.

Read more about the Stanford LMNA meeting:
https://www.lmnacardiac.org/successful-lmna-cardiac-in-person-patient-meeting-at-stanford-university/

We are proud to share that LMNA Cardiac Diseases Network (LMNAcardiac.org) continues to actively contribute to advancing LMNA cardiomyopathy research through patient engagement, community collaboration, awareness initiatives, and support of research efforts worldwide.

Building strong connections between patients, families, clinicians, researchers, and industry partners remains an important part of accelerating progress and improving outcomes for the LMNA community.

We are encouraged to see increasing international collaboration and growing momentum in the development of new research programs, registries, and potential therapies for LMNA-related cardiac disease.

Read more about our ongoing contributions to LMNA cardiomyopathy research:
https://www.lmnacardiac.org/lmnacardiac-org-contributes-to-advancing-lmna-cardiomyopathy-research/

We continue to closely follow the growing number of clinical trials and research initiatives focused on cardiac disease. These developments provide important hope and progress for patients and families worldwide.

On our website, we maintain an overview of ongoing and upcoming LMNA clinical trials, research programs, and therapeutic developments to help keep the community informed about new opportunities and scientific progress related to LMNA-related cardiac disease.

We have also integrated the Global Heart Hub Clinical Trial Portal to help patients and families more easily search for and explore ongoing clinical trials that may be relevant to their condition.

In addition, our recently launched LMNA Research Studies page provides an easy way to stay up to date with recent LMNA-related scientific publications, research studies, and developments in the field. We warmly encourage anyone interested in LMNA research progress to sign up and follow these updates.

We encourage patients and families to regularly review these resources and discuss potential research participation or trial eligibility with their cardiologist or medical team when appropriate.

Explore the latest LMNA clinical trials and research developments:
https://www.lmnacardiac.org/clinical-trials/

Stay up to date with recent LMNA research studies and publications:
https://www.lmnacardiac.org/research-studies/

Our LMNA virtual patient meetings continue to provide an important opportunity for patients and families around the world to connect, share experiences, ask questions, and support one another in a welcoming environment.

These online group meetings bring together members of the global LMNA community and offer valuable peer support for people living with LMNA-related cardiac disease and LMNA gene mutations.

Whether you are newly diagnosed or have participated before, we warmly encourage patients and families to join future sessions and become part of the conversation.

Learn more about upcoming LMNA virtual patient meetings and registration:
https://www.lmnacardiac.org/patient-meetings/

We are pleased to announce an upcoming LMNA Cardiac In-Person Meetup in Frankfurt, Germany, taking place on 24 October 2026.

This meeting will provide a valuable opportunity for patients, families, and members of the LMNA community to meet in person, connect, exchange experiences, and strengthen local support networks.

In-person gatherings continue to play an important role in bringing the community together and creating meaningful personal connections among people affected by LMNA-related cardiac disease.

We warmly encourage interested patients and families to participate and help share this event within the LMNA community.

More information about the Frankfurt LMNA meetup:
https://www.lmnacardiac.org/lmna-cardiac-in-person-meetup-frankfurt-germany-24-october-2026/