LMNA Cardiac News
Successful Ticking Clock Challenge Raises More Than €15,000 for LMNA Research
September 8, 2026
Sunday, September 6, the Action for LMNA community came together at Circuit Zandvoort for an unforgettable Ticking Clock Challenge. What started as an invitation to walk and run for LMNA turned into an inspiring day of determination, connection and hope — raising an incredible €15,027 for LMNA research. The iconic…Coming Up Soon: Join the LMNA Cardiac Community in Frankfurt on 24 October
September 8, 2026
Our LMNA Cardiac in-person meetup in Frankfurt, Germany, is getting closer — and there is still time to register! On Saturday, 24 October 2026, we will bring together people affected by LMNA-related cardiac disease, along with family members and loved ones, for an informal day of meeting, talking and connecting…LMNA Cardiac Video Series — New Episode Now Available!
August 21, 2026
We are excited to share a new episode of our LMNA Cardiac Video Series, now available on YouTube! Our video series is dedicated to sharing the voices and experiences of people affected by LMNA-related cardiac conditions. Through open and personal conversations, we hope to support, educate, and connect patients, families,…Free Webinar: LMNA Gene Therapy and the SUNBEAM-LMNA Clinical Trial
August 17, 2026
We are pleased to share an upcoming free webinar for the LMNA community focused on an important new area of research: gene therapy for LMNA-related dilated cardiomyopathy (DCM). The webinar, “LMNA Gene Therapy: A New Approach to LMNA Cardiomyopathy,” will take place on Wednesday, September 9, 2026, from 6:00–7:00 PM…From the Four Days Marches to the Ticking Clock Challenge: The Action for LMNA Campaign Continues
July 26, 2026
After four unforgettable days of determination, teamwork, and perseverance, the Action for LMNA team has successfully completed the 2026 Nijmegen Four Days Marches. Together, the team walked to raise awareness of LMNA-related cardiomyopathy and to generate vital funding for research into this rare inherited heart disease. Throughout the week, walkers,…Action for LMNA Starts the 2026 Four Days Marches
July 22, 2026
The first official day of the Nijmegen Four Days Marches is complete, marking the start of four days of determination, teamwork, and commitment to raising awareness of LMNA-related heart failure and funding research that could change lives. After taking part in the traditional Flag Parade to officially open the event,…LMNA Cardiac Receives Wiek van Gilst Collaboration Prize at DCVA-NLHI Translational Research Meeting
June 22, 2026
LMNA Cardiac is proud to announce that it has been awarded the Wiek van Gilst Collaboration Prize during the 10th DCVA-NLHI Translational Cardiovascular Research Meeting in Utrecht. The award was presented to Stefan Bassant and Pieter Glijins in recognition of their efforts to advance collaboration between patients, researchers, clinicians, and organizations working to…LMNA Cardiac Stanford Meeting Presentations Now Available on YouTube
June 20, 2026
We are pleased to announce that video presentations from the LMNA Cardiac In-Person Patient Meeting at Stanford University are now available to watch on our YouTube channel. The meeting, held on May 13–14, 2026, at Stanford University in Palo Alto, California, brought together patients, families, clinicians, researchers, patient advocates, and…Join the Ticking Clock Challenge and Support LMNA Cardiac
June 19, 2026
LMNA Cardiac is proud to be participating in the Ticking Clock Challenge (Dutch: Tikkende Klok Challenge), a unique fundraising initiative that brings people together to support important health causes while raising awareness and making a real difference. This challenge offers an opportunity for patients, families, friends, healthcare professionals, and supporters…Documentary Film Project Launched: Bringing LMNA Out of the Shadows
June 15, 2026
We are excited to share a powerful teaser video for a new documentary film project that aims to bring LMNA-related cardiac diseases out of the shadows. The film will primarily tell the story of Rogier, one of three patients featured — alongside Marco and Bjørn. Rogier is not only a…
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Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!