LMNA Cardiac News
LMNAcardiac.org Contributes to Advancing LMNA Cardiomyopathy Research
May 6, 2026
We are proud to share that LMNA Cardiac Diseases Network (LMNAcardiac.org) has been affiliated with several recent scientific publications focused on LMNA-related cardiomyopathy and laminopathies. These collaborations reflect the growing importance of patient organizations in accelerating research, increasing awareness, and supporting the development of future therapies. Among the recent publications:…Clinical Trial Search Tool
May 4, 2026
We have integrated the Global Heart Hub Clinical Trial Portal to help you easily find ongoing clinical trials relevant to LMNA-related cardiac conditions. This user-friendly tool brings together trusted, up-to-date information on clinical studies across different countries, making it easier to explore potential opportunities to participate in research. Clinical trials…LMNA Cardiac In-Person Meetup – Frankfurt, Germany (24 October 2026)
April 30, 2026
We are pleased to invite you to an upcoming LMNA Cardiac in-person meetup taking place on 24 October 2026 in Frankfurt. This informal gathering is designed to bring together individuals and families affected by LMNA-related cardiac conditions in a relaxed and welcoming setting. Why join this meetup? We recognize that…Nuevocor Added as Speaker at Stanford LMNA Meeting and Agenda Now Available | 13–14 May
April 27, 2026
We’re excited to share that the agenda for the upcoming LMNA Cardiac Patient Meeting at Stanford University is now available — and it looks incredibly interesting, informative, and inspiring. We are also pleased to announce a newly confirmed and important session: Gene Therapy for LMNA Cardiomyopathy: A New Direction in…Patient-Led Sponsor Events Support LMNA Cardiac Research
April 27, 2026
We are incredibly grateful to see patients, families, and supporters taking action by organizing fundraising events for LMNA cardiac disease research. These inspiring initiatives are so important and make a real difference in helping research move forward. Sponsor Event in The Netherlands Supporters in The Netherlands are organizing a sponsor…First Dutch LMNA Patient Day Was a Big Success and Brings Community Together
April 25, 2026
The first Dutch LMNA Patient Day ❤️ was a great success. With 169 LMNA patients attending, the event was completely full. The strong interest and turnout showed how much need there is for information, connection, and community. A big thank you to Amsterdam UMC for hosting this special event and…Coming Soon: LMNA Cardiac In-Person Patient Meeting — Stanford University, California | May 2026
April 8, 2026
We are pleased to announce the next LMNA Cardiac In-Person Patient Meeting taking place in Stanford, California in May 2026. Following the success of our first U.S. in-person patient meeting in Raleigh, North Carolina, this event will once again bring together patients, family members, caregivers, clinicians, researchers, and advocates from…New in the LMNA Patient Interview Series: Episode #3
March 4, 2026
We are pleased to share Episode #3 of the LMNA Patient Interview Series, a series of conversations with members of the LMNA community who share their personal experiences living with LMNA-related disease. These interviews aim to highlight the real-life journeys behind LMNA cardiomyopathy and laminopathies — the challenges, the resilience,…LMNA Partners with Citizen Health: New Year, New Understanding for Our Community
February 9, 2026
This February, as we mark American Heart Month and begin a new year, the LMNA Cardiac Network is launching a transformative partnership that puts the power of your medical data back in your hands—with access to personalized tools and the ability to easily contribute to the next generation of LMNA…LMNAcardiac Becomes Official Charity Partner of the Walk of the World (4 Days Marches)
January 15, 2026
We are incredibly proud to announce that LMNAcardiac has become an official Charity Partner of the Walk of the World (4Daagse) – the largest walking event in the world, bringing together more than 45,000 participants from over 70 nationalities. This is a huge honor and an important milestone for our…
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Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.
You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!