LMNA Cardiac News
Upcoming Webinar: Living with Heart Failure
August 7, 2025
A Candid Conversation with Dr. Samuel Sears Join us for a hope-filled discussion on the emotional journey of heart failure Are you or a loved one navigating the psychological challenges that come with heart failure? Don't miss this essential Q&A webinar featuring internationally recognized cardiac psychologist Dr. Samuel F. Sears.…Register Now: LMNA In-Person Patient Meeting in Raleigh and Durham, North Carolina – November 2–3, 2025
August 4, 2025
LMNAcardiac.org is hosting its next in-person patient meeting this fall on November 2–3, 2025, in Raleigh / Durham, North Carolina, U.S. This two-day gathering will bring together individuals and families affected by LMNA-related cardiac conditions, alongside leading researchers and clinicians. The meeting will foster connection, share the latest scientific updates,…Save the Date: Dutch LMNA Patient & Gene Carrier Day – October 4, 2025
July 31, 2025
We’re happy to announce the date for the Dutch LMNA Patient and Gene Carrier Day 2025 — an in-person gathering for people living with an LMNA mutation and their families in the Netherlands. 📍 Location: Amsterdam UMC, AMC location📅 Date: Saturday, October 4, 2025 This event will bring together Dutch…Thank You, Team Action for LMNA 🌟
July 23, 2025
We at LMNAcardiac.org are incredibly grateful to Team Action for LMNA for their outstanding achievement at the recent 4 Days Marches. This inspiring initiative, Action for LMNA, was planned and led by Karen and extra promoted and accelerated by Bernard. Together with their fantastic team, they walked with determination, raised…Help Us Raise Awareness for LMNA-Related Heart Disease: Your Support Is Needed (Flyer)
July 21, 2025
Have you or someone you love been diagnosed with an LMNA gene mutation? LMNA-related heart disease is rare but serious, and we urgently need your help to spread the word and grow our global patient network. At LMNAcardiac.org, we are building a supportive, patient-led community for individuals and families affected…Announcement: LMNA-331 Research Collaboration Between LMNAcardiac.org and Maastricht University Begins
June 28, 2025
We are proud to share that LMNAcardiac.org has initiated a new multi-year research project at Maastricht University (Dept. of Biochemistry, CARIM), led by Dr. Rogier Veltrop and Prof. Leon Schurgers. The project, titled “LMNA-331,” focuses on mechanobiochemistry and cell signalling of LMNA-related cardiomyopathies. This four-year PhD program will utilize advanced models, including LMNA-iPSC derived…Walking for a Cure: Dutch Team Raises Awareness and Funds for LMNA-Related Heart Disease
June 28, 2025
A dedicated team of walkers from the Netherlands is stepping up to raise awareness for LMNA-related cardiomyopathy during the world-famous Nijmegen Four Days Marches (Vierdaagse). Through the official Vierdaagse Sponsorloop platform, the team “Actie voor genetisch hartfalen (LMNA)” is inviting donations to support research and advocacy for this rare genetic heart…FDA Clears Nuevocor’s IND for NVC-001 Gene Therapy Targeting LMNA-Related Dilated Cardiomyopathy
June 10, 2025
Nuevocor, a biotechnology company focused on genetically defined cardiac diseases, has announced that the U.S. Food and Drug Administration (FDA) has cleared its Investigational New Drug (IND) application for NVC-001, a novel gene therapy candidate for LMNA-related dilated cardiomyopathy (DCM). LMNA-related DCM is a progressive and life-threatening condition caused by…Understanding Cardiomyopathy from LMNA Experts
June 6, 2025
Recorded version Join a Special Live Zoom Session on July 1st, 2025 Are you aware of the genetic condition that can cause sudden, life-threatening heart issues—sometimes in young and otherwise healthy individuals? Cardiomyopathy, particularly forms linked to mutations in the LMNA gene, often progresses silently until serious symptoms appear. Early…LMNA Cardiomyopathy Unveiled: Expert Insights from Dr. Dominic Abrams
June 5, 2025
In this recorded webinar hosted by the LMNA Cardiac Diseases Network, Dr. Dominic Abrams of Boston Children's Hospital delivers an authoritative exploration of LMNA Cardiomyopathy. This genetic condition, linked to severe cardiac issues such as dilated cardiomyopathy and arrhythmias, is unpacked through cutting-edge research and clinical expertise. Dr. Abrams discusses…
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You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!