October 2025 | LMNA Cardiac Newsletter

We’re excited to invite you to our next virtual patient meeting, dedicated to individuals and families affected by LMNA-related conditions. This online gathering offers a welcoming space to connect, share experiences, and support one another — whether you’re newly diagnosed or have been part of the LMNA community for years.

Event details:
📅 Date: Sunday, October 26, 2025
🕛 Time: 12:00 p.m. – 1:30 p.m. EST (Time Zone Converter)
💻 Location: Google Meet

🔗 Learn more and join the meeting →

We’re excited to invite the LMNA cardiac community — patients, families, researchers, and clinicians — to an in-person meeting in Raleigh, North Carolina, this November.

This event offers a unique opportunity to connect, share experiences, and hear updates from LMNA researchers and partners, including BridgeBio. Whether you’re newly diagnosed or have been part of the LMNA community for years, this gathering is a chance to learn, collaborate, and strengthen our shared network.

📅 Dates: November 2–3, 2025
📍 Location: Raleigh, North Carolina, USA

🔗 Learn more and register →

Energy balance is vital for heart health — especially in inherited cardiomyopathies like those caused by LMNA mutations. HeartFuel is a new initiative exploring how medical nutrition could support heart energy metabolism alongside traditional care.

Here’s what to know:

• HeartFuel is not a drug but a regulated medical nutrition concept using approved ingredients (EFSA, FDA).
• It aims to provide an additional nutritional option to help support heart function.
• The initiative reflects patient-driven innovation in rare cardiac disease care.

🔗 Learn more: Introducing HeartFuel

🧡 LMNA Cardiac shares this for awareness — we do not endorse specific commercial products.

Contribute to vital LMNA cardiac research by donating blood samples! New collection sites are now available across the U.S. and Europe. Your participation accelerates understanding and progress.

🔗 Learn More and Sign Up »

Join us for an informative Dutch-language webinar about LMNA-related heart and muscle conditions — hosted by Hart in Shape in collaboration with LMNA Cardiac. The session will be presented by Dr. Rogier Veltrop (Maastricht University), LMNA researcher and co-founder of LMNA Cardiac.

🗓️ Date: Thursday, October 16, 2025
🕢 Time: 19:30 – 20:30 CET
💻 Location: Online
💰 Cost: Free participation

Dr. Veltrop will discuss:
• The role and importance of the LMNA gene
• Early detection and prevention
• Living with an LMNA mutation
• Common heart problems linked to LMNA mutations

There will also be time for audience questions.

🫀 Who should attend?
Dutch-speaking patients, relatives, healthcare professionals, and anyone interested in LMNA-related cardiomyopathies.

👉 Sign up for free via Hart in Shape →