We are proud to share an important milestone in the growth of the LMNA Cardiac Diseases Network. Our global community now includes close to 1,000 LMNA patients in 67 countries, and with this expansion, we are excited to introduce our first official country representatives.
These representatives play a vital role in strengthening our network by offering:
- Support in local languages
- Country-specific guidance and information
- Peer connection and community building
- Help navigating local healthcare systems and resources
You can find our first country representatives here:
👉 https://www.lmnacardiac.org/about/
This is just the beginning. We will soon be expanding to additional countries and regions, including Germany, France, and South America. We are also working closely with several very active and dedicated support groups in different countries who are making a real difference locally.
We Are Looking for More Country Representatives
To continue building a strong and inclusive global network, we are actively looking for more country and regional representatives.
If you:
- Live with LMNA-related cardiomyopathy or support someone who does
- Are involved in a local patient group or community
- Want to help connect and support others in your country
We would love to hear from you.
📧 Please contact us at info@lmnacardiac.org
We are happy to help you get started and will support you every step of the way in setting up and growing your local network. Together, we can ensure that people affected by LMNA-related cardiomyopathy feel seen, supported, and connected—wherever they are in the world..