Opens in a new tab
Register for our cycling event and help raise funds for LMNA research!

Newsletter Archive

  • September 2026 | LMNA Cardiac Newsletter

    September 22, 2026

    Gene Therapy, Research Updates & Growing Global Connections Watch the LMNA gene therapy webinar and Stanford presentations, join upcoming patient meetings, celebrate a major fundraising milestone, and follow the continued growth of our global LMNA community. ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏…
  • August 2026 | LMNA Cardiac Newsletter

    August 23, 2026

    Gene Therapy, Patient Stories & Taking Action Together Discover the latest on LMNA gene therapy, patient stories, community fundraising, and upcoming opportunities to connect with the global LMNA community. ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏…
  • June 2026 | LMNA Cardiac Newsletter

    June 24, 2026

    Documentary Project, Research Recognition & Global Community Impact Explore updates on the new LMNA documentary project, research collaborations, community advocacy, international patient events, fundraising initiatives, and ongoing efforts to advance LMNA cardiomyopathy research worldwide. ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏…
  • May 2026 | LMNA Cardiac Newsletter

    May 22, 2026

    LMNA Cardiac News: Research Progress, Community Events & Global Connections Discover updates from the Stanford LMNA meeting, inspiring patient-led fundraising efforts, successful community gatherings, local meetups, and growing international LMNA support groups. ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏…
  • May 2026 | LMNA Cardiac Newsletter

    May 1, 2026

    LMNA Cardiac News: Research Progress, Community Events & Global Connections Discover updates from the Stanford LMNA meeting, inspiring patient-led fundraising efforts, successful community gatherings, local meetups, and growing international LMNA support groups. ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏…
  • April 2026 | LMNA Cardiac Newsletter

    April 9, 2026

    LMNA Cardiac News: Upcoming Events, Patient Resources & Community Connections Explore upcoming patient meetings, helpful video resources, local and global community connections, and new ways to stay involved with LMNA Cardiac. ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏…
  • March 2026 | LMNA Cardiac Newsletter

    March 18, 2026

    Strengthening Our Global LMNA Community — New Events, Tools, and Connections Join us for important updates from the LMNA community: registrations are now open for our in-person patient meeting at Stanford, we’re introducing a new AI-powered care app, expanding country-specific groups, and sharing new patient stories and upcoming events. ͏  ͏…
  • February 2026 | LMNA Cardiac Newsletter

    February 10, 2026

    LMNA Community Update: Meeting at Stanford, New Initiatives, and Ways to Get Involved Join us for important updates from the LMNA community: registrations are now open for our in-person patient meeting at Stanford, we’re launching a new partnership with Citizen Health, expanding country-specific groups, and inviting you to take part…
  • January 2026 | LMNA Cardiac Newsletter

    January 15, 2026

    Updates from the Global LMNA Cardiac Community Upcoming in-person and virtual meetings, growth of our global community, new country representatives, research updates, and ways to getinvolved — discover what’s next for the LMNA cardiac community. LMNA Cardiac Newsletter Updates from the Global LMNA Cardiac Community Dear LMNA Cardiac, We’re pleased…
  • December 2025 | LMNA Cardiac Newsletter

    December 24, 2025

    Together, We’re Making a Rare Disease Less Rare — Happy Holidays from LMNAcardiac As we close out the year, we’re sharing updates on LMNA research, patient meetings, and community initiatives — and reflecting on how your involvement continues to help make this rare disease less rare. LMNA Cardiac Newsletter Together,…

Subscribe To Our Newsletter

Show Your Support

Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonate