Newsletter Archive
January 2026 | LMNA Cardiac Newsletter
January 15, 2026
Updates from the Global LMNA Cardiac Community Upcoming in-person and virtual meetings, growth of our global community, new country representatives, research updates, and ways to getinvolved — discover what’s next for the LMNA cardiac community. LMNA Cardiac Newsletter Updates from the Global LMNA Cardiac Community Dear LMNA Cardiac, We’re pleased…December 2025 | LMNA Cardiac Newsletter
December 24, 2025
Together, We’re Making a Rare Disease Less Rare — Happy Holidays from LMNAcardiac As we close out the year, we’re sharing updates on LMNA research, patient meetings, and community initiatives — and reflecting on how your involvement continues to help make this rare disease less rare. LMNA Cardiac Newsletter Together,…November 2025 | LMNA Cardiac Newsletter
November 25, 2025
New Resources, Stories, and Opportunities for the LMNA Community In this edition, we’re sharing new educational resources, community stories, and opportunities to connect — including our latest webinar recording on PGT for LMNA cardiomyopathies, the launch of our new video series, and details for the upcoming December patient meeting. Stay…November 2025 | LMNA Cardiac Newsletter
November 13, 2025
Connecting, Learning, and Moving Forward Together — November 2025 LMNA Cardiac Newsletter Connecting, Learning, and Moving Forward Together — November 2025 LMNA Cardiac Newsletter LMNA Cardiac Newsletter Connecting, Learning, and Moving Forward Together November 2025 LMNA Cardiac Newsletter Dear LMNA Cardiac, November brought meaningful progress and connection across the LMNA…October 2025 | LMNA Cardiac Newsletter
October 9, 2025
Progressing LMNA Care & Research: Webinars, Patient Meetings, HeartFuel & Blood Donations Explore the latest LMNA updates — from upcoming patient meetings and HeartFuel to new webinars and ways you can get involved, raise awareness, and help move LMNA research forward. LMNA Cardiac Newsletter Progressing LMNA Care & Research: Webinars,…September 2025 | LMNA Cardiac Newsletter
September 4, 2025
Stronger Together: News & Updates from LMNA Cardiac In this edition of the LMNA Cardiac newsletter, you’ll find exciting updates across our community: the recording of Dr. Samuel Sears’ powerful webinar on living with heart failure, preparations for the U.S. in-person patient meeting at Duke, the official launch of the…August 2025 | LMNA Cardiac Newsletter
August 10, 2025
LMNA Cardiac Update: Events, Research News & Community Impact Register for our heart failure webinar, celebrate an incredible fundraising success, and get ready for upcoming LMNA patient events in the Netherlands and the U.S. Plus, learn about a major new research collaboration. LMNA Cardiac Newsletter Events, Research News & Community…July 2025 | LMNA Cardiac Newsletter
July 15, 2025
LMNA Cardiac Update: Webinars, Patient Day, and Research Highlights This LMNA Cardiac newsletter brings exciting updates, from our upcoming webinar with Dr. Samuel Sears to the LMNA Patient & Family Day in North Carolina. We’re also sharing inspiring community efforts and critical research updates, including the LAMIN Registry and c.331…June 2025 | LMNA Cardiac Newsletter
June 12, 2025
Updates, Opportunities & Community Highlights Updates, Opportunities & Community Highlights. Over the past few months, we've seen a wave of momentum, connection, and hope across the LMNA cardiac landscape. LMNA Cardiac Newsletter Updates, Opportunities & Community Highlights Dear LMNA Cardiac, Over the past few months, we've seen a wave of…May 2025 | LMNA Cardiac Newsletter
May 15, 2025
Momentum in the LMNA Community—Don't Miss These Updates Momentum in the LMNA Community—Don't Miss These Updates | Heading to Paris for the Laminopathies Meeting - Sign Up for This Sunday’s LMNA Patient Video Chat - Nuevocor Raises $45M to Advance LMNA Cardiomyopathy Gene Therapy - New LMNA Mutation Registry of…
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You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!