April 2026 | LMNA Cardiac Newsletter

The upcoming LMNA Cardiac In-Person Patient Meeting at Stanford, California is a wonderful opportunity for patients, families, caregivers, and healthcare professionals to come together, learn, and connect.

The program and agenda are now available, and it promises to be a very interesting, informative, and valuable meeting for everyone involved in the LMNA cardiac community.

Whether you are able to attend for one day or both days, we would be very happy to welcome you. We would also love to see more registrations and participants, so if you are interested, please consider signing up soon.

We also warmly encourage everyone — whether you are planning to attend or not — to share this meeting within your network, including family members, friends, other patients, and especially your cardiologist, electrophysiologist, or medical team. Your help in spreading the word can make a real difference.

👉 Please register here if you would like to join:
LMNA Cardiac In-Person Patient Meeting – Stanford, California

We hope to welcome many of you to Stanford soon.

We invite you to explore our LMNA patient interview series, where members of the community share their personal experiences, insights, and journeys with LMNA cardiac conditions.

These interviews — along with additional videos and webinars — are available on our website: https://www.lmnacardiac.org/patient-interviews/

You can also find this content on our LMNA Cardiac YouTube channel, making it easy to watch at any time. 

Please join us for our video group chat for patients with LMNA gene mutations on May 31st, 2026, from 12:00–1:30 PM EST / 6:00–7:30 PM CEST.

These bi-monthly virtual patient meetings are a valuable opportunity to connect with other patients, ask questions, share experiences, and gain support from people who truly understand.

We warmly encourage patients to register and participate, whether this will be your first time joining or you have attended before.

👉 More information and registration:
https://www.lmnacardiac.org/patient-meetings/

We hope many of you will join us.

We’re excited to share another important step in strengthening our global LMNA community: our country-specific groups are active and growing.

These groups help LMNA patients and gene mutation carriers connect locally — in their own region and language — to share experiences, offer support, and exchange practical information closer to home.

Currently active groups include: Austria, Germany, Sweden, France, the United Kingdom, Australia, China, and Latin America.

👉 Learn more and explore the groups:
https://www.lmnacardiac.org/the-global-lmna-cardiac-network-continues-to-grow-meet-our-country-representatives/

If you are interested in joining a group — or helping start one in your region — we would love to hear from you: info@lmnacardiac.org

We are happy to share that there will be an LMNA patient meetup/get-together in the Boston area on Saturday, June 13th, from 1:00 PM to 3:15 PM.

This will be a nice opportunity to meet in person, connect, and spend time together with others in the LMNA community.

More information about the exact meetup location will follow soon. Updates will also be shared in the Facebook group:
LMNA Cardiac Facebook Group

If you would like to join, or if you have any questions, please reach out to mary@lmnacardiac.org to register or learn more.

We also encourage you to share this meetup within your network, including family members, friends, and others in the LMNA community who may be interested.