Have you or someone you love been diagnosed with an LMNA gene mutation? LMNA-related heart disease is rare but serious, and we urgently need your help to spread the word and grow our global patient network.
At LMNAcardiac.org, we are building a supportive, patient-led community for individuals and families affected by LMNA mutations. Together with patients, families, and clinicians, we aim to accelerate research, improve care, and give hope to those living with this condition.
💡 What is LMNA?
The LMNA gene produces essential proteins, lamin A and C, that help keep the nucleus of our cells strong and stable. When there are changes (mutations) in this gene, it can lead to:
- Arrhythmias (abnormal heart rhythms)
- Dilated cardiomyopathy (DCM)
- Conduction disease (which may require a pacemaker or defibrillator)
- Increased risk of sudden cardiac arrest
- Some individuals may also experience skeletal muscle weakness or other symptoms.
🌍 Why We Need Your Help
We believe that by connecting patients and experts worldwide, we can drive faster progress in understanding and treating LMNA-related cardiac diseases. But to achieve this, we need more people to join and support our efforts.
You can help us in a few simple but powerful ways:
✅ Download, print, and share our flyer – Hang it up in medical centers, waiting rooms, clinics, universities, or community boards. Every person who sees it could be someone in need of support or someone who can contribute to research.
✅ Share the flyer online – Post it on your social media channels, email it to friends, family, or medical professionals, and encourage them to spread the word too.
✅ Grow the network – The larger our community, the more impact we can have. Every new patient, family, or specialist who joins brings us one step closer to better treatments and more awareness.
✅ What LMNAcardiac.org Offers
- Clear, patient-friendly information about LMNA mutations and heart risks
- Updates on clinical trials and research breakthroughs
- Opportunities to connect with others through events and our online community
- Advocacy and fundraising efforts led by patients
- Support to share your story and raise awareness
🔗 Get Involved Today
Visit www.lmnacardiac.org to download the flyer, sign up for updates, and become part of this growing movement. Together, we can create change for LMNA patients and families worldwide.