June 2025 | LMNA Cardiac Newsletter

Updates, Opportunities & Community Highlights

LMNA Cardiac Newsletter

Updates, Opportunities & Community Highlights

Dear LMNA Cardiac,

Over the past few months, we’ve seen a wave of momentum, connection, and hope across the LMNA cardiac landscape. From groundbreaking regulatory news to international collaboration, here’s what’s new:

📢 Highlights from the 2025 Laminopathies Meeting

Our team recently returned from the 2025 Laminopathies Meeting in Paris, filled with gratitude and renewed energy. This gathering brought together global researchers, clinicians, and advocates to share updates and strengthen ties. Read our reflections and key takeaways.

🔗 Gratitude and Hope at the 2025 Laminopathies Meeting in Paris »

✅ FDA Clears IND for Gene Therapy Targeting LMNA-Related DCM

In an exciting regulatory milestone, the FDA has cleared the Investigational New Drug (IND) application for NVC-001, a gene therapy candidate from NuevoCure, specifically targeting LMNA-related dilated cardiomyopathy.

🔗 Read More »

🧬 Join Us Live: Understanding LMNA Cardiomyopathy – July 1st Event

Join LMNA experts from the Netherlands and the Heart Health India Foundation for a special Zoom session on LMNA-related cardiomyopathy—a rare genetic heart condition that can progress silently.

Tuesday, July 1, 2025
8–9 PM IST | 4:30–5:30 PM CEST
Free registration

Learn about symptoms, diagnosis, treatment, and why early awareness matters.

🔗 More Info »

🎥 New Webinars & Educational Resources

🔹 Dr. Dominic Abrams offers an expert view into LMNA cardiomyopathy and patient care strategies in our latest recorded webinar.

🔗 Watch Now »

🔹 Dr. Lisa Wilsbacher explains how LMNA gene variants are identified and interpreted in clinical settings, helping patients and families better understand their genetic reports.

🔗 Watch the Video »

💬 Next Virtual Patient Chat – August 31, 2025

Join us for our next LMNA community video group chat – a welcoming space to connect, ask questions, and support one another.
🗓️ Sunday, August 31, 12–1:30pm EST / 6–7:30pm CEST

🔗 More Info & Registration »

🌐 LMNA Priority (LeDucq) Website is Live

We’re excited to share that the LMNA Priority initiative now has its own website! Learn about our collaborative international effort to drive forward research and awareness.

🔗 Visit LMNA-Priority.org »

🧬 Free Genetic Testing Now Available for Eligible Families

If you or a family member has been diagnosed with cardiomyopathy, you may qualify for no-cost genetic testing and counseling through the Genetic Cardiomyopathy Awareness Consortium. Early genetic insights can empower families to make informed health decisions and contribute to research.

🔗 Learn More and See If You’re Eligible »

Thank you for being part of this community. Whether you’re a patient, caregiver, clinician, or researcher, your involvement is helping push the field forward — and we’re so grateful to be on this journey with you.❤️

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June 2025 | LMNA Cardiac Newsletter

LMNA Cardiac Newsletter

📢 Highlights from the 2025 Laminopathies Meeting

✅ FDA Clears IND for Gene Therapy Targeting LMNA-Related DCM

🧬 Join Us Live: Understanding LMNA Cardiomyopathy – July 1st Event

🎥 New Webinars & Educational Resources

💬 Next Virtual Patient Chat – August 31, 2025

🌐 LMNA Priority (LeDucq) Website is Live

🧬 Free Genetic Testing Now Available for Eligible Families

Recent News

Upcoming Webinar: Living with Heart Failure

Register Now: LMNA In-Person Patient Meeting in Raleigh and Durham, North Carolina – November 2–3, 2025

Save the Date: Dutch LMNA Patient & Gene Carrier Day – October 4, 2025

Thank You, Team Action for LMNA 🌟

Help Us Raise Awareness for LMNA-Related Heart Disease: Your Support Is Needed (Flyer)

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