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Dutch LMNA Patient & Gene Carrier Day – Saturday, April 18th 2026

We’re happy to announce the date for the Dutch LMNA Patient and Gene Carrier Day 2026 (will be held in Dutch) — an in-person gathering for people living with an LMNA mutation and their families in the Netherlands.

📍 Location: Amsterdam UMC, AMC location
📅 Date: Saturday, April 18, 2026

Agenda: in the event flyer.

This event will bring together Dutch patients, gene carriers, caregivers, and healthcare professionals for a day of connection, shared experiences, and the latest insights into LMNA-related conditions.

Download the flyer

💛 Together, we continue to strengthen the LMNA community.


For our international community:
If you are based outside the Netherlands, you might be interested in the international LMNA in-person meeting at Duke University (USA) this November.
👉 More information here


Save the Date: Nederlandse LMNA Patiënten- en Gen-Dragersdag – 18 april 2026

We zijn blij om alvast de datum aan te kondigen voor de Nederlandse LMNA patiënten- en gen-dragersdag 2026 – een fysieke bijeenkomst voor mensen met een LMNA-mutatie en hun naasten in Nederland.

📍 Locatie: Amsterdam UMC, locatie AMC
📅 Datum: Zaterdag 18 april 2026

Agenda: deze is te bekijken in de flyer.

Deze dag brengt Nederlandse patiënten, gen-dragers, familieleden en zorgprofessionals samen voor ontmoeting, herkenning en het delen van de nieuwste inzichten rond LMNA-gerelateerde aandoeningen.

🗓 Houd deze datum vrij!

Bekijk hier de flyer

💛 Samen versterken we de LMNA-community.

Register:
Wilt u zich vóór 5 april 2026 aanmelden als u wilt deelnemen? Dat kan via onderstaande link of via de QR-code in de flyer.

https://forms.gle/fJ92T94viZURrfpw5

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Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
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