Our LMNA Cardiac in-person meetup in Frankfurt, Germany, is getting closer — and there is still time to register!
On Saturday, 24 October 2026, we will bring together people affected by LMNA-related cardiac disease, along with family members and loved ones, for an informal day of meeting, talking and connecting in person.
A chance to meet people who understand
Living with an LMNA mutation can sometimes feel isolating, especially when there are few opportunities to meet someone else facing similar questions and experiences.
That is why this gathering is intentionally informal. There will be no formal conference programme or presentations. Instead, the focus will be on conversation, sharing experiences and getting to know others within the LMNA community.
Whether you have been living with an LMNA diagnosis for many years, were diagnosed recently, are supporting a family member, or simply want to listen and meet others — you are very welcome.
Why come to Frankfurt?
Meeting another patient or family face-to-face can offer something that is difficult to recreate online. It is an opportunity to:
- Meet others affected by LMNA-related cardiac conditions
- Exchange experiences and practical knowledge
- Ask questions and learn from one another
- Build connections with other patients and families
- Spend time with people who understand many of the challenges that come with an LMNA diagnosis
You are welcome to participate actively in the conversations or simply come along and listen.
Meeting details
📅 Saturday, 24 October 2026
📍 Frankfurt, Germany
Registration is still open, and we would love to welcome more patients and families to the meeting.
If you have been thinking about joining us, now is a great time to register.
👉 Register below for the LMNA Cardiac Frankfurt meeting
Help us reach more people in Germany and beyond
Because LMNA-related cardiac disease is rare, reaching patients and families can be challenging. You can help.
Please consider sharing this meeting with someone affected by an LMNA mutation, or with a cardiologist, geneticist, electrophysiologist, neurologist or other healthcare professional who may know patients who could benefit from attending.
Every new connection helps make our rare LMNA community a little less rare.
We hope to see you in Frankfurt on 24 October!
LMNA Cardiac Team