We are incredibly proud to announce that LMNAcardiac has become an official Charity Partner of the Walk of the World (4Daagse) – the largest walking event in the world, bringing together more than 45,000 participants from over 70 nationalities. This is a huge honor and an important milestone for our community.
From 21–25 July 2026, we will once again participate with our initiative “Action for LMNA”, raising awareness and funds for research into genetic heart failure caused by mutations in the LMNA gene.
Looking Back: An Unforgettable 50 km for LMNA
Last year, 15 of us walked the full 50 km as a team to shine a spotlight on cardiac laminopathy. It was an emotional, powerful, and unforgettable experience. Together, we not only completed the challenge, but also raised a significant amount of money to support scientific research into LMNA-related heart disease.
Along the route, our incredible volunteers supported us at our own LMNA support station. Thanks to their dedication and encouragement, every single team member earned their medal 🏅—a true team achievement we will never forget.
🎥 Watch the aftermovie where Action for LMNA is featured: https://www.youtube.com/watch?v=79yDO9DcIPY
Join Us in 2026: Walk for LMNA, Walk for Research
In 2026, we are ready to do it again – bigger, stronger, and together.
Are you an LMNA family member or supporter?
Do you want to actively contribute to more research and better treatments for cardiac laminopathy?
You can join Action for LMNA as an individual or as part of a group in our sponsored walk during the 4Daagse.
👉 Register for the 4Daagse: https://www.4daagse.nl/deelnemen/burger/inschrijven
👉 Interested in joining the LMNA team?
Email us at 4daagse@lmnacardiac.org – we are happy to help you maximize your chances of securing a starting place and to support you in your preparations.
Why We Walk
For many in our community, LMNA is not just a gene – it is a daily reality. By walking together, we:
- Increase global visibility for LMNA and cardiac laminopathy
- Raise essential funds for scientific research
- Show patients and families that they are not alone
Together, we make LMNA and cardiac laminopathy visible.
Together, we walk for research. 💪
