We are excited to share a powerful teaser video for a new documentary film project that aims to bring LMNA-related cardiac diseases out of the shadows.
The film will primarily tell the story of Rogier, one of three patients featured — alongside Marco and Bjørn. Rogier is not only a patient who received a heart transplant due to LMNA-related heart disease, but also a dedicated scientist and group leader. He is actively directing the scientific arm of LMNAcardiac.org and has committed his life to researching and finding solutions for this condition.
About the Documentary
This documentary will focus on Rogier’s personal journey — from patient to researcher — while highlighting the broader impact of LMNA mutations. These mutations can lead to dilated cardiomyopathy, conduction disorders, and heart failure. Through intimate storytelling, the film seeks to show the daily realities, challenges, and hope within the LMNA community.
Scale of the Disease
Approximately 4,000 people in the Netherlands are affected by this one genetic disease. Worldwide, it is estimated to impact hundreds of thousands of people, yet it remains largely unknown to the public and even many in the medical field.
Why This Matters
By sharing these powerful patient stories — including Rogier’s dual perspective as both patient and scientist — the documentary aims to:
- Raise public and medical awareness
- Reduce isolation for affected families
- Encourage earlier diagnosis and better care
- Inspire greater support for research and potential cures
Call for Support
To turn this important documentary into reality, the team is looking for partners, sponsors, and donors who want to make a real impact.
Want to help bring LMNA out of the shadows? Send a direct message (DM) if you are interested in supporting this project.
Interested in receiving the pitchdeck? info@lmnacardiac.org
Watch the Teaser Videos: