Register for our cycling event and help raise funds for LMNA research!

LMNA Cardiac Video Series — New Episode Now Available!

We are excited to share a new episode of our LMNA Cardiac Video Series, now available on YouTube!

Our video series is dedicated to sharing the voices and experiences of people affected by LMNA-related cardiac conditions. Through open and personal conversations, we hope to support, educate, and connect patients, families, caregivers, healthcare professionals, and everyone involved in the LMNA community.

A new patient story

In this latest episode, we continue our LMNA Patient Interview Series, creating space for an honest conversation about the realities of living with an LMNA-related condition.

Personal stories are an important part of our mission. While every LMNA journey is different, hearing from others can help patients and families feel less alone, recognize shared experiences, and better understand the challenges—and resilience—that can be part of life with LMNA.

The conversation also helps give a human face to LMNA cardiomyopathy, complementing the medical and scientific information we share through our website, webinars, research updates, and educational resources.

📌 Why watch the series?

  • Hear firsthand experiences from people affected by LMNA conditions.
  • Gain insight into the personal side of living with an inherited cardiac condition.
  • Help raise awareness of LMNA-related cardiomyopathy and the impact it can have on patients and families.
  • Join a growing community committed to sharing knowledge, supporting one another, and advancing LMNA awareness and research.

We encourage you to watch and share the video with others who may benefit from hearing these experiences. By sharing patient voices, we can continue building greater understanding and awareness around LMNA-related cardiac disease.

Have a story or experience you would like to share in a future episode? We would love to hear from you. Together, we can continue giving a voice to the LMNA community.

Want to hear more stories from the LMNA community?
Watch all Patient Interviews

We encourage you to watch and share the videos with others who may benefit from hearing these experiences. By sharing patient voices, we can continue building greater understanding and awareness around LMNA-related cardiac disease.

Have a story or experience you would like to share in a future episode? We would love to hear from you. Together, we can continue giving a voice to the LMNA community.

Subscribe To Our Newsletter

Show Your Support

Every contribution, regardless of its amount, fuels crucial efforts in research, medical education, patient advocacy, and raising awareness about LMNA cardiac diseases.

You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonate