LMNA Cardiac is currently visiting China as part of our ongoing efforts to strengthen the global LMNA community and build a stronger network for patients and families across the country.
An important step in this work is our collaboration with CORD (Chinese Organization for Rare Disorders), one of China’s leading rare disease organizations. Together, we are working to identify and connect LMNA patients, families, clinicians, and experts and create a stronger foundation for LMNA awareness and support in China.
The LMNA China patient group is already growing rapidly and now includes well over 70 members — an encouraging milestone that demonstrates the importance of creating opportunities for people affected by LMNA to find and support one another.
During our visit, we will meet with CORD in Beijing, together with LMNA patients and medical experts, to discuss how we can further develop the network, improve connections, and strengthen collaboration. Following Beijing, we will continue the trip with meetings and conversations in Shanghai and Guangzhou.
By bringing together patients, experts, and rare disease organizations, we hope to create lasting connections and make it easier for people affected by LMNA-related cardiac disease in China to find information, expertise, and community support.
We look forward to sharing more about the meetings, experiences, and new connections from our China trip soon.