LMNA Cardiac News
FDA Clears Nuevocor’s IND for NVC-001 Gene Therapy Targeting LMNA-Related Dilated Cardiomyopathy
June 10, 2025
Nuevocor, a biotechnology company focused on genetically defined cardiac diseases, has announced that the U.S. Food and Drug Administration (FDA) has cleared its Investigational New Drug (IND) application for NVC-001, a novel gene therapy candidate for LMNA-related dilated cardiomyopathy (DCM). LMNA-related DCM is a progressive and life-threatening condition caused by…Understanding Cardiomyopathy from LMNA Experts
June 6, 2025
Join a Special Live Zoom Session on July 1st, 2025 Are you aware of the genetic condition that can cause sudden, life-threatening heart issues—sometimes in young and otherwise healthy individuals? Cardiomyopathy, particularly forms linked to mutations in the LMNA gene, often progresses silently until serious symptoms appear. Early awareness and…LMNA Cardiomyopathy Unveiled: Expert Insights from Dr. Dominic Abrams
June 5, 2025
In this recorded webinar hosted by the LMNA Cardiac Diseases Network, Dr. Dominic Abrams of Boston Children's Hospital delivers an authoritative exploration of LMNA Cardiomyopathy. This genetic condition, linked to severe cardiac issues such as dilated cardiomyopathy and arrhythmias, is unpacked through cutting-edge research and clinical expertise. Dr. Abrams discusses…Dr. Lisa Wilsbacher Sheds Light on LMNA Gene Variants in New Educational Video
June 5, 2025
Dr. Lisa Wilsbacher, MD, PhD, a distinguished cardiologist specializing in cardiovascular genetics at Northwestern University's Feinberg School of Medicine, recently shared her insights on LMNA gene variants in a video published by the DCM Foundation. The video, titled "Dr. Lisa Wilsbacher Discusses LMNA Gene Variant," is available on YouTube: In…Save the Date: LMNA In-Person Patient Meeting at Duke University This Fall
June 4, 2025
LMNAcardiac.org has announced its next in-person patient meeting, taking place November 2–3, 2025, at Duke University in Durham, North Carolina. This two-day event will bring together individuals and families affected by LMNA-related cardiac conditions, as well as leading researchers and clinicians in the field. The gathering aims to foster connection,…Gratitude and Hope at the 2025 Laminopathies Meeting in Paris
June 2, 2025
The 2025 Laminopathies meeting in Paris (laminopathies.net) brought together a vibrant community of researchers, clinicians, patients, and advocates with a shared goal: advancing understanding and treatment of laminopathies — including LMNA-related cardiac disease. On behalf of LMNAcardiac.org and all LMNA patients ❤️, we extend a heartfelt thank you to the…A Global Gathering for LMNA: Highlights from the 5th International Meeting on Laminopathies in Paris
May 31, 2025
The 5th International Meeting on Laminopathies, held in Paris last week, brought together a vibrant and engaged community of researchers, clinicians, patients, and advocates. Hosted by Antoine Muchir in collaboration with LMNAcardiac.org, the meeting was a powerful reminder of the impact a shared mission can have in the rare disease…The Laminopathies Meeting – Join Us in Paris or Online!
May 19, 2025
We’re excited to announce that the upcoming Laminopathies Meeting will take place in person in Paris — and will also be accessible online via Zoom webinar for virtual attendees around the world. 🔗 Join the Zoom webinar:https://zoom.us/j/96240745334 Hosted by the international laminopathy research and patient community, the Laminopathies Meeting is…Heading to Paris for the Laminopathies Meeting!
May 15, 2025
We’re excited to be heading to Paris next week for Laminopathies 2025, the international meeting dedicated to advancing research, care, and community around lamin-related diseases. If you’ve already registered—we can’t wait to see you there! If not, there’s still time to join us. Register now at laminopathies.net and be part…New LMNA Mutation Registry of North America Launches to Advance Research and Patient Care
May 8, 2025
Duke University School of Medicine has launched the Lamin Registry of North America (LAMIN), a comprehensive initiative aimed at advancing research into LMNA-related diseases. This registry is part of the PRIORITY network, an international collaboration funded by the Leducq Foundation, linking research sites across North America and Europe. LAMIN's primary…
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