LMNA Cardiac News
LMNA Cardiac Video Series — New Episode Now Available!
August 21, 2026
We are excited to share a new episode of our LMNA Cardiac Video Series, now available on YouTube! Our video series is dedicated to sharing the voices and experiences of people affected by LMNA-related cardiac conditions. Through open and personal conversations, we hope to support, educate, and connect patients, families,…Free Webinar: LMNA Gene Therapy and the SUNBEAM-LMNA Clinical Trial
August 17, 2026
We are pleased to share an upcoming free webinar for the LMNA community focused on an important new area of research: gene therapy for LMNA-related dilated cardiomyopathy (DCM). The webinar, “LMNA Gene Therapy: A New Approach to LMNA Cardiomyopathy,” will take place on Wednesday, September 9, 2026, from 6:00–7:00 PM…From the Four Days Marches to the Ticking Clock Challenge: The Action for LMNA Campaign Continues
July 26, 2026
After four unforgettable days of determination, teamwork, and perseverance, the Action for LMNA team has successfully completed the 2026 Nijmegen Four Days Marches. Together, the team walked to raise awareness of LMNA-related cardiomyopathy and to generate vital funding for research into this rare inherited heart disease. Throughout the week, walkers,…Action for LMNA Starts the 2026 Four Days Marches
July 22, 2026
The first official day of the Nijmegen Four Days Marches is complete, marking the start of four days of determination, teamwork, and commitment to raising awareness of LMNA-related heart failure and funding research that could change lives. After taking part in the traditional Flag Parade to officially open the event,…LMNA Cardiac Receives Wiek van Gilst Collaboration Prize at DCVA-NLHI Translational Research Meeting
June 22, 2026
LMNA Cardiac is proud to announce that it has been awarded the Wiek van Gilst Collaboration Prize during the 10th DCVA-NLHI Translational Cardiovascular Research Meeting in Utrecht. The award was presented to Stefan Bassant and Pieter Glijins in recognition of their efforts to advance collaboration between patients, researchers, clinicians, and organizations working to…Join the Ticking Clock Challenge and Support LMNA Cardiac
June 19, 2026
LMNA Cardiac is proud to be participating in the Ticking Clock Challenge (Dutch: Tikkende Klok Challenge), a unique fundraising initiative that brings people together to support important health causes while raising awareness and making a real difference. This challenge offers an opportunity for patients, families, friends, healthcare professionals, and supporters…Documentary Film Project Launched: Bringing LMNA Out of the Shadows
June 15, 2026
We are excited to share a powerful teaser video for a new documentary film project that aims to bring LMNA-related cardiac diseases out of the shadows. The film will primarily tell the story of Rogier, one of three patients featured — alongside Marco and Bjørn. Rogier is not only a…LMNA Cardiac Participates in Global Heart Hub Patient Networks Meeting in Amsterdam
June 12, 2026
Representatives of LMNA Cardiac recently attended the Global Heart Hub Patient Networks Meeting in Amsterdam, joining patient advocates from across the cardiovascular disease community for three inspiring and productive days of learning, collaboration, and discussion. The meeting brought together representatives from 52 patient organisations across 27 countries, alongside clinicians, policymakers,…Successful LMNA Cardiac In-Person Patient Meeting at Stanford University
May 20, 2026
Last week, the LMNA Cardiac Diseases Network hosted a very successful and inspiring in-person patient meeting at the beautiful Stanford University campus in Palo Alto, California. Over two special days, LMNA patients, families, researchers, clinicians, and industry representatives came together to connect, learn, and share experiences within the LMNA community.…LMNAcardiac.org Contributes to Advancing LMNA Cardiomyopathy Research
May 6, 2026
We are proud to share that LMNA Cardiac Diseases Network (LMNAcardiac.org) has been affiliated with several recent scientific publications focused on LMNA-related cardiomyopathy and laminopathies. These collaborations reflect the growing importance of patient organizations in accelerating research, increasing awareness, and supporting the development of future therapies. Among the recent publications:…
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You can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!
DonateDonateYou can make a difference in various ways: by committing as a regular monthly donor, offering a single donation, organizing fundraising events both online and in person, contributing to our special tribute funds, or through your unique fundraising initiatives!